Cardio-Facio-Cutaneous (CFC) syndrome in Iceland

Total collected

48,000 kr.

Pledge count

13

CFC syndrome is a rare genetic condition, it´s so rare that there are only around 1 in 810.000  people in the world that have it. There are only three people in Iceland that have been diagnosed with CFC. Breki was born in 2004 and was the first one diagnosed with the CFC syndrome in Iceland. By supporting this charity, it will enable the beneficiaries to fund research into this condition allowing us to better understand it and hopefully provide the means to develop medicine to cure those individuals that are affected by it.

Participant that support this charity

Runner
10 K - Competition

Hafdís Sól Björnsdóttir

Has collected 20,000 kr. for
Cardio-Facio-Cutaneous (CFC) syndrome in Iceland
200% of goal
Runner
Fun Run

Breki Björnsson

Has collected 28,000 kr. for
Cardio-Facio-Cutaneous (CFC) syndrome in Iceland
28% of goal

New pledges

Pledge history

Jónas Runar Viðarsson
Amount3,000 kr.
Áfram Breki
Lilja Líf
Amount5,000 kr.
❤️❤️❤️
Sofia
Amount5,000 kr.
No message
Mia
Amount1,000 kr.
No message
Anna Kristín Daníelsdóttir
Amount5,000 kr.
Flottur
Kristjana Líf
Amount5,000 kr.
Áfram Breki minn ♥️
Guđrún Mary Ólafsdóttir
Amount5,000 kr.
No message
Dúna
Amount2,000 kr.
Áfram BB king ❤️
Herdís Lilja
Amount1,000 kr.
🩷🩷
Gunna frænka
Amount3,000 kr.
Best!!!
Simmi frændi
Amount5,000 kr.
No message
Gunna frænka
Amount3,000 kr.
Flottastur!!
Helga og Óli
Amount5,000 kr.
No message

Styrktaraðilar

  • Íslandsbanki
  • Corsa
  • 66 Norður
  • Gatorade
  • Holdur Car Rental Iceland