Dravet-syndrome, organizations to support Ægir Rafn Þrastarsson

Safnast hafa 341.000 kr.

The purpose of the Dravet-superhero organizations is to raise funds to support Ægir Rafn and his relatives due to extensive expanse, as result of his mental retardation, such as purchase of equipments, travel expenses, activities, medical services, etc.

About Dravet

Dravet-syndrome is caused by defect in gene SCN1A. Dravet-syndrome is rare and difficult form of epilepsy with mental retardation

Status
Contributions: 73
Donation count
Total amount
39
132.000 kr.
32
204.000 kr.
2
5.000 kr.

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