Myotonic Dystrophy Association of Iceland

Safnast hafa 750.000 kr.

The Myotonic Dystrophy Association of Iceland is a non-profit association for people with DM and families with members suffering from DM. Myotonic dystrophy (DM) is a genetic disorder that affects many parts of the body. There is currently no cure for myotonic dystrophy, but it is possible to manage and treat the symptoms of those diagnosed with the disease. The disease was first diagnosed in Iceland in 1903, although there are little or no resources available to patients here in Iceland.

The main objective of the Myotonic Dystrophy Association of Iceland is to facilitate access to information about DM in Icelandic, to contribute to increased knowledge of professionals, as well as to establish a forum where families with members suffering from DM and patients can access resources and seek assistance.

 

Status
Contributions: 158
Donation count
Total amount
36
85.000 kr.
118
654.000 kr.
4
11.000 kr.

Fyrri 
Síða 1 af 27
Næsta 

Social media - #hlaupastyrkur