Rúnar Árni is almost 3 years old, he is the only Icelander with Barth syndrome. Barth syndrome is a very rare disease, so rare that Rúnar Árni is the only Icelander with this syndrome. The syndrome is characterized by an enlarged and weak heart.
The family has already been out waiting for 10 months in Sweden far away from home, family and friends. Rúnar Árni is our hero, gone through so much in his short life.
Rúnar's family and friends decided to start a support fund to help the family. The fund will enable Rúnar Árni's family and friends to visit and help his parents while they are in hospital in Swenden.